A charity he founded, L’Arche, said Vanier died Tuesday in Paris after suffering from thyroid cancer.
The Government of Ontario is engaging in a series of public consultations on how children and youth with autism, including those with complex needs, can be better supported.
The Province says that these consultations will help look at ways to reduce barriers for children with autism, while also looking specifically at enhancements to the Ontario Autism Program.
The Telephone Town Hall forums will be hosted by a non-partisan consultant and run for one hour. They will be broken up into segments where the key themes of the consultation will be a focus of discussion.
To register go to www.ontario.ca/autism You will then be taken to a registration page on the Eventbrite site. To register you will need to provide your name, telephone number and email address. After you have registered you will receive a confirmation email at the email address you have provided.
Ontario is making changes to its controversial autism program, eliminating income testing and exploring supports based on need.
Parents of children with autism have been protesting the plan announced last month by Children, Community and Social Services Minister Lisa MacLeod, saying it would leave kids without access to the levels of therapy they need.
MacLeod has previously announced that in order to clear a waiting list of 23,000 children, kids with autism would receive direct funding to pay for treatment, with caps of up to $20,000 per year for treatment for children under six and $5,000 a year for children six to 18.
Those maximums were based on family income, and MacLeod says today that all kids under six diagnosed as on the spectrum will receive $20,000 and kids over six will receive $5,000.
MacLeod also says the government is now looking at how best to provide additional supports to families based on the diagnosed need of the child.
Intensive therapy can cost up to $80,000 a year and many parents with kids already in government-funded therapy say they will be unable to cover the difference to keep their kids in full-time therapy.
A private member’s bill that would ensure continuous services and support are provided to adults with intellectual or developmental disabilities after they turn 18 passed second reading in the Legislature on February 21st.
Noah and Gregory’s Law, which was brought forward by Windsor West MPP and NDP Critic for Community and Social Services Lisa Gretzky, aims to eliminate the gap in services and end the years-long waitlist that tens of thousands of families currently face.
“When people with developmental disabilities turn 18, they lose their youth support and have to go through another application process to apply for adult support,” said Gretzky, who was referring to Special Services at Home and Passport funding.
“Even though many families apply well in advance of a child turning 18, and even though those supports are supposed to begin as soon as the applicant turns 18, many individuals fall into a service gap – they are cut off from their youth support, and forced to wait years for the adult support to kick in.”
According to Gretzk, as many as 16,000 people with developmental or intellectual disabilities are stuck on the waitlist for Passport funding.
If passed into law, Gretzky’s bill will guarantee that anyone receiving youth support will continue receiving these services until their adult support takes effect.
The Government of Ontario has announced changes to Ontario’s Autism Program. Under the government’s proposed reforms, families may receive a Childhood Budget until their child turns 18. The amount of the budget will depend on the length of time a child will be in the program, with supports targeted to lower and middle-income families. For example, a child entering the program at age two would be eligible to receive up to $140,000, while a child entering the program at age seven would receive up to $55,000.
Families will be able to choose to purchase the eligible services including behavioural services, from providers of their choice on a fee-for-service basis
Additional changes include:
- Doubling funding to expand the province’s five diagnostic hubs so that families can receive a diagnosis sooner;
- Introducing a provider list to help families find qualified clinical supervisors for behavioural services;
- Establishing an independent agency to bring families into the program, help them manage their funding, and assist them in purchasing and accessing services; and
Autism Ontario will be offering support to families to help them understand their options and to assist them in finding service providers through workshops, training sessions and one-on-one support.
- To be eligible for the Ontario Autism Program, a child must have a diagnosis of Autism Spectrum Disorder from a qualified professional. Families are eligible to apply for program funding for children and youth up to age 18.
- Today, there are over 2,400 families waiting for a diagnostic assessment, and more than 23,000 families waiting for behavioural services through the Ontario Autism Program with demand continuing to grow.
- Evidence shows that children who receive behavioural intervention therapies between two and five years of age have the best long-term outcomes.
For more information, contact Autism Service Ontario Toll-Free Number at 1-888-284-8340
Nurturing Collaborative Relationships:
Nurturing Collaborative Relationships
When advocating for and managing your child’s IEP, who are the people you will need to know, collaborate and converse with? As in business, hierarchies also exist within schools; for example, perhaps a simple problem can be addressed directly with a teacher, rather than the principal. Because no one knows your child better than you, meeting with key people on a regular basis to share as much information as possible about your child can help them to better support your son or daughter’s classroom experience and learning goals. Introducing and including your community service coordinator, facilitator or other advisory/support person to school staff can also be of great benefit to the process.
In a 7-2 split decision, this past Friday in the case of S.A. v. Metro Vancouver Housing Corp, the Supreme Court of Canada overturned British Columbia’s Court of Appeal’s decision on discretionary (Henson) trusts. In doing so, the court has set a precedent that will serve to shield the rights of persons with disabilities and helps to reduce poverty.
Discretionary trusts are used by parents and family members of persons with intellectual disabilities to provide financial security for their loved ones. The court decided that discretionary trusts should not be considered assets when determining income levels because the beneficiary cannot unilaterally force the trustees to make payments.
The appellant in the case was an individual with a disability living in a Metro Vancouver Housing Corporation (MVHC) complex. They were required to provide income verification every year as part of their application for rental assistance. In 2015, MVHC declined to approve the appellant’s application after learning that they were the beneficiary of a Henson trust. The Supreme Court ruled a Henson trust could not disqualify the appellant from being considered by MVHC for rental assistance.
The central issue in the appeal was whether assets in a Henson trust could be considered assets to assess an individual’s eligibility to receive social assistance benefits. This issue is of importance to people with disabilities as Henson trusts are a common estate planning tool used by families to ensure that their loved ones have a measure of financial security and autonomy after their death.
People First of Canada (PFC) and the Canadian Association for Community (CACL) served as co-intervenors advocating on behalf of the many persons with disabilities, and their families who regularly rely on discretionary (Henson) trusts as a tool to combat the systemic disadvantage and poverty persons with an intellectual disability face when their parents die.
Shelly Fletcher, Executive Director of PFC, responded that “For many of the people with disabilities that make up People First, discretionary trusts provide a modest level of financial stability after family members have passed away. But it isn’t like these folks are sitting on excess funds that can be used at their discretion. It is always encouraging when people with disabilities are heard – and today it feels like People First was heard loud and clear at the Supreme Court.”
“People with disabilities continue to face barriers in their participation as equal members of Canadian society. There is still more work to be done, but today we will celebrate,” said Joy Bacon, President of CACL.
This ruling does help, but it does not eliminate the need for good public policy that addresses the longstanding poverty of people with an intellectual disability, the barriers they face, and issues they encounter before and after their parents die.
Guy and Elaine Peters of the Giving Dreams Foundation have donated $20,000 to Brampton Caledon Community Living to provide individuals with community outings that promote social inclusion. The Giving Dreams Foundation, which will be winding down, has been a steadfast supporter of Brampton Caledon Community Living for many years. The Peters, who have a daughter with a developmental disability, said “it has been our pleasure to help Brampton Caledon Community over the years provide opportunities for social inclusion.”
Brampton Caledon Community Living thanks the Peters and the Foundation for this generous donation and tremendous support over the years.